"can you still have graves' disease years after a thyroidectomy?" If I have all of these symptoms and have had levels increase so much, is it worth seeing another dr due to my history or do you think this is normal? As I understand it.....Like Hashimoto's, Graves is there for life . Here is my story: A year ago I felt a bump on the right side of my neck, so on a routine follow up visit with my PCP for diabetes, I mentioned it to him. 3 weeks after I was taken off of PTU. Does Taking Thyroid Medication Cause High Blood Pressure (Hypertension)? … One doctor wants a monitor of pulse five times daily, he’s concerned about para thyroid damage. I wish I had found it weeks ago, but I didn’t so I have to move on. #1. https://www.ncbi.nlm.nih.gov/pubmed/22914564, #2. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5413587/, #3. https://www.liebertpub.com/doi/abs/10.1089/thy.2010.0090, #4. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5455212/, #5. https://www.ncbi.nlm.nih.gov/pubmed/28545679, #6. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3336179/, #7. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4851449/, #8. https://www.ncbi.nlm.nih.gov/pubmed/18832945. For approx 10 yrs I was on synthroid and suffered, then switched to natural desiccated thyroid (NDT) its better but not perfect. So is there any possible way to lose weight after the Radioactive iodone treatment or is it pretty much an absolute lost cause? They ran many tests including an cerebral angiogram to check for a brain tumor which I doubted. Have questions for us? who gave me 150 of Synthyroid. Thinning hair, buldging eyes. It's good to follow your journey though and see that everything I'm going through is normal. Because of this, people who undergo RAI (meaning those who destroy their thyroid gland) need some type of thyroid hormone replacement. I tend to have a high heart rate when I exercise it goes up to 130 righ away then may go as high as 174 at harder workouts. I’m a nurse, and tend to over think things. probably sounds like the dumbest question ever to people in the know but I had RAI done 1 1/2 years ago and am only now getting my #'s in the normal range endo wants TSH at around 1 for me it is at 12 I think last time blood work was done down from a high of 64 (dont quote me on the exact #'s). But over the past month I see my weight dropping a half to a pound daily. Today radioactive iodine is in common use to suppress the hyperthyroidism that accompanies Graves’ disease. I truly believe the Prednisone (20 mg for 6 weeks after RAI) prevented it from getting worse. Not everyone is a good candidate for thyroidectomy, however. 11 comments. I have the symptoms of hypo not hyper, is she wrong? After RAI, you still have graves, your thyroid will be either dead or reduced and you'll have to be on replacement hormones. Instead of working to actively reduce thyroid function in your body (which is what the treatment for hyperthyroidism is) you may want to start focusing on how to optimize what little thyroid function you have left. Thank you, I had RAI treatment 21 April 2017 dose was 400 MBq ( United Kingdom) I was diagnosed Graves’ disease 2008 my thyroid levels wasn’t massively high I refused rai treatment 2011 contunie Antithyroid medication treatment almost 8 years ! Graves’ disease is typically treated with anti-thyroid medication, radioactive iodine therapy, or surgery. Radioactive iodine is a procedure that is often used to treat hyperthyroidism. I am in the military, stationed in Fl. Nov 8th dignosised with graves disease pls shed some light ... Graves Disease help with treatment options. But my surgeon palpated three nodules and pathology report confirmed PTC, so a completion surgery was scheduled and performed this past April, and that lobe also showed cancer nodules on pathology report as well as some tissue purposely left because some cancer nodules had invaded my vocal chords. After that they again were having the same symptoms. The researchers found that the proportion of overweight people increased from 9.6% to 18.5% (almost double) and the proportion of obese patients increased from 6.4% to 21% (almost quadruple) (4). Approximately 30% with Graves' disease will have a remission after prolonged treatment with anti-thyroid medication. If your doctor can’t definitively diagnose Graves’ disease after looking at your TSH, T3, and T4 levels, he or she may order additional blood tests to check other factors that may indicate Graves’ disease—such as antibody levels. This RAI Treatment is called thyroid ablation. But if you have Graves’ disease and smoke, you’re 5 times more likely to develop eye disease than non-smokers. If you fit into this category then you may not need to use thyroid medication afterward. One more thing: about diet and weight gain. Also I drink 100 ounces of water plus other hydrating fluids and food per day. TEAMeD-5: Improving outcomes in thyroid eye disease. I know the long standing frustration of it all. 5. And that training tells me I won’t be ready to go back to work that afternoon. I’m at the point now where I told all the doctors for my medical team, and team being the operative word here, that I’m not going to offer anymore feelings of what I’m going threw, or feeling, I’m not going to ask anything, nothing, you all have my lab reports and other diagnostics, y ‘all can figure it out for yourselves! The other 20% may require additional testing and the use of other thyroid medications which contain T3 thyroid hormone. There isn’t a ‘specialist’ in the area of hormone balancing but you can use the resource above to help you find someone who can help you. 0. The combination you would want to try if you are post RAI is as follows: Thyroid Daily Essentials 1 packet each day https://www.restartmed.com/product/thyroid-daily-essentials-thyroid-multivitamin/ After reading all the comments I feel worried about the side effects.I saw in the report that they give me I-131 15mcl for hyperthyroidism. Recently also diagnosed with B12 deficiency and had exhibited most of the symptoms! Just realize that you will always be in a 'sensitive' category and you will be more likely to gain weight compared to people with their thyroid intact. I was originally on Synthroid for a while and as I got older my body changes and T3 was required for optimal levels. I had RAI treatment year 2010, and now I am taking levothyroxine for my hormonal replacement since I am considered as hypothyroid patient. I had RAI for Graves 3 weeks ago and am really feeling tired and disconnected from myself. Thanks look forward, Yes! Obviously it can no longer affect your thyroid but the progression of graves is independent of thyroid treatment. ... Because you are 20 yr old medications will harm if you are going to have a baby, same reason for not to give rai. I will know more in a few days when he has all the pathology reports back etc. I am worried the medication or added T3 (Armour)is making that happen and it could be hurting my heart. Many people with Graves’ Disease have received the radioactive iodine uptake test. His focus is on managing thyroid disorders, weight loss resistance, and other sex hormone imbalances. It should be noted that most people become hypothyroid after taking radioactive iodine for Graves' disease. But you probably at least know a little bit about RAI or you wouldn't be here. Thyroidectomy should be considered for anyone with Graves’ disease (GD) and moderate-to-severe eye disease, or smokers with GD due to increased risk of exacerbation of eye disease after radioactive iodine. Thyroid hormones control metabolism. I was diagnosed with Graves, and had RAI in 1989. He also told me something about an injection of something, as well as being on some sort of thyroid hormone replacement therapy for the remainder of my life. I would actually think about taking chances with the cancer instead of gaining weight. I have Graves’ disease and recently have a hyperthyroid flare up after being in remission, I went back on my meds but was recently taken off to see if I can do radiation. Ask our community of thousands of members your health questions, and learn from others experiences. If you have already undergone RAI or medical treatment and it has failed, you are probably still a candidate for surgery. I did not gain any weight while on Prednisone (just 5 lbs during the last two weeks.) and seriously lethargic?! Are you thinking about getting radioactive iodine treatment? It’s definitely possible it just takes more time and the weight loss is slower. Perhaps the most concerning of all of the issues after RAI is the weight gain. By the time you are reading this article, I hope very much that you don’t have Graves’ Disease or Hyperthyroidism anymore. I don’t have any definitive results/reports as yet, however, I do have that gut feeling. Any idea Sir ? Safer*, was the first to report on a racial and ethnic differences and T3 levels at diagnosis as risk factors for weight gain after the treatment for hyperthyroidism with radioactive iodine. If a Graves’ patient still has active TSH Receptor antibodies (after a thyroidectomy or RAI), then their TSH will remain suppressed or “normal” even though they may have very little thyroid hormone in their body. So, now my doctor told me a list of things to expect over the next while. If you destroy the entire gland then you will definitely need to be on thyroid medication. In that case, “[you] feel more confident in suggesting medical management” with antithyroid medications, said Dr. Christofides. Just as the symptoms before RAI differ from person to person, I'm sure the after effects vary as well. I had RAI 1 month ago. Will you be able to lead a normal life? I am feeling all the emotions you described, depression is a big one, but all anyone is interested in is giving me another pill to “make me happy again.” I have battled my weight since I was a child, I had dropped from 400 pounds to 210 about six years prior, and was afraid all my efforts would be lost now. Graves’ disease is a common cause of an overactive thyroid gland (hyperthyroidism). Dr. Stuart Seigel answered 12 years experience Endocrinology : ... graves disease after thyroidectomy. Thanks. Within the first 2 years I gained 15 pounds with no diet/lifestyle change. Leave A Reply . The presence of any of these symptoms AFTER your procedure (especially if you didn't have them prior to your procedure) may be an early indication that your thyroid medication is not optimized. Thank you! Now that you are considered to be hypothyroid there is a world of potential therapies, supplements, regimens, and protocols that are available to you. I had the motto: “I’ve never met a stranger, they are just the friends I haven’t met yet.” Now, I would rather not talk to anyone, and if I’m forced to, I keep it to bare minimum. I'm still working towards homeostasis not quite there yet. My hair has been a part of me for many years, it is waist length, and I’m wondering if having it cut off and sent to make a wig for myself would be best or just wait and see if I do in fact loose my hair. Women with GD who are pregnant, nursing, or who have young children at home would benefit from a surgical consultation in an effort to avoid radiation exposure to the home. Besides usual surgical & anaesthet ... Read More. With a regime as this, it’s no wonder for depression, no sleep! By the time you are reading this article, I hope very much that you don’t have Graves’ Disease or Hyperthyroidism anymore. Since then I have suffered most every day with severe chemical sensitivity. They all tell me Thyroid Cancer is the easy cancer. Another problem I’ve faced is I ask one doctor about this or that feeling I’m having and I get told that doctor doesn’t deal with that have to tell the other doctor, I tell the other doctor and they tell me I have to tell another doctor because they don’t deal with that issue. My problem now is my hair loss and I can’t help get rid of this problem. He is trained in Internal Medicine, Functional Medicine, and Integrative Medicine. After all, didn't the radioactive iodine work to reduce your overall thyroid hormone production? Once I've had that, do I still have Graves? SHBG :43 (16-55) Most people who get radioactive iodine treatment do so because they are considered to be hyperthyroid (sometimes people get RAI for thyroid cancer (5) but most people get it for hyperthyroidism). My appetite is still quite small, though it's grown a bit in the last few weeks. 8PM HS snack and VS and glucose readings. January 6, 2016 January 6, 2016. This product is not intended to diagnose, treat, cure or prevent any disease. Hi! I've found that these 10 foods cause the most problems for thyroid patients. Also, people with minor to major eye problems are not candidates for RAI treatment. Will it cause you to gain weight? Question…. I've had Grave's disease for almost 20 years now and currently awaiting RAI treatment. I chose to not have RAI and twelve years after my diagnosis I still have my thyroid gland. Once you have a total thyroidectomy, do you still have graves disease? The answer is maybe, and it depends on the person, how much damage was done to their thyroid, and other factors that aren't always in your control. The most common reason for RAI is the autoimmune condition known as Graves' disease (6). As you had RAI, not thyroidectomy you still have "dead" thyroid and in effect still have Graves. Graves Disease is an Autoimmune Disease and usually when one autoimmune disease is found, there is usually a 2nd one found (this one being Diabetes). why after almost two years do I still have graves symptoms. Because Graves' disease increases your metabolism, your doctor will check your pulse and blood pressure and look for signs of tremor. Sit down and dig into these posts. Reply Delete. But why would you want to restore thyroid function to your thyroid gland if you had it destroyed because you were already producing too much? Eat breakfast. 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